And for the final event of the night..... Gabe and Matt being put in a bubble
Sunday, October 31, 2010
Saturday, October 30, 2010
Lately, I've been a little stuck in a funk full of worries, sort of like how Gabriel gets stuck under the dining room table:
My funk started because I became lost in my worries; worries that in most cases I can't do anything to change. My darling husband doesn't understand why I worry so much and neither do I, I really think that it may just be part of my genetic make-up; fair-skinned, blonde, worrier.
Sure I attempt to leave it all my worries at God's feet but they always creep back in: what's going to happen if insurance denies Gabe's eye surgery again, how can we get Gabe to use his left arm, will I ever get more than 2 hours of sleep at a time, what if we can't figure out all the adoption money issues, how am I going to leave Gabe to travel to Ethiopia.
With tears for us to mend,
I brought my broken dreams to God
Because He was my friend.
But then instead of leaving Him
In peace to work alone,
I hung around and tried to help
With ways that were my own.
At last I snatched them back and cried,
"How could you be so slow"
"My child," He said, "What could I do?
You never did let go."
-Robert J. Burdette
Thursday, October 28, 2010
You didn't!! Well, that's probably because there aren't too many elk farms around. But we were fortunate enough that are good friends the Grimmett's visit one every year and this year they invited us! And boy did we have fun!!!
The Grimmett's: Jason, Jessie, Cody, Clara and baby Chase
Lots of beautiful scenery
Getting close to the elk
The Bull (It was mating season for the Elk and he kept buggling at one of the girls in the wagon)
The Elk farm will definately be a new family tradition for our family!!
Wednesday, October 27, 2010
Saturday, October 23, 2010
- schizencephaly - rare brain abnormality where some of the grey matter of the brain is missing. Gabe's missing part (called a cleft) is on the ride side of his brain, thus effecting his left side of his body.
- Corpus callosum - tissue that divides the right and left side of the brain
- agenesis of the corpus callosum- corpus callosum is missing. Gabriel's agensis of the corpus callosum is minimal and the cause the cause (the doctor believes) of his torticollis
- torticollis - stiffening of muscles, having too much tone. Gabe has torticollis on the whole left side of his body and a tiny bit in his right leg.
- dysplasia of the septum pellucidum - the septum pellucidum seperates the left and right ventricles of the brain and dysplaisa simply means malformation. Gabriel's septum pellucidum consists of immature cells and looks abnormal on a scan. Dysplasia of the septum pellucidum has one great risk; septo-optic dysplasia
- septo-optic dysplasia - underdevelopment of the optic nerve and/or absence of the septum pellucidum. Gabe's opthamologist checks his optic nerve regularly and right now Gabe is showing no signs of septo-optic dysplasia
Along with the above 'problems,' Gabriel also has a small area of dysplasia (malformation) on the left side of his brain as well.
So, Thursday we went to see Dr. F and after a seemingly exhaustive exam Dr. F once again discussed his findings with me. He is 'very pleased' with Gabriel's verbal and cognitive skills and is overall happy with his development. Dr. F is still concerned with Gabe's lack of using his left hand but feels the continued occupational therapy along with getting bigger and exploring things that will require the use of two hands will continue to alleviate the problem.
Dr. F also noted some increased tone in Gabe's right leg that we hadn't noticed before. He's attributing it to the minor dysplasia of his cortex on the left side of Gabe's brain and just mentioned the importance of working with all of Gabriel's extremities and not just the left ones (which we knew and had just talked about with his occupational therapist that morning).
The last thing Dr. F talked about with me was referring Gabe to a medical geneticist. Besides all of Gabriel's problems listed above he is missing his 3rd cranial nerve. And while this diagnosis puts us in the wait-and-see catagory with his other diagnosises, Dr. F is concerned that a missing 3rd cranial nerve is not usually found with a patient that has schizencephaly or dysplasia of the septum pellucidum. So, we scheduled an appointment with a geneticist to make sure we're not missing anything else that could be going on with Gabe.
Overall though, Gabriel is doing great! And we couldn't be more pleased with how well he is doing. Now if he'd just start sleeping better... but that's a story for a whole different post!
Friday, October 22, 2010
Wednesday, October 20, 2010
Autumn is a second spring where every leaf is a flower ~ Albert CamusMapleside Farm in Brunswick. So that is precisely what we did one fabulous fall Saturday at the start of October.
At any apple farm you are sure to find apples:
Or a slide that may be just a bit too big for a little ones fancy.